Supported by a grant from the Engelberg Foundation

Health care today is undergoing an unprecedented transition, marked by a new focus on the value of services rather than their volume. While meaningful quality measures are critical to defining health care value, most measures today enumerate and assess what care is provided, but not whether that care affects people in the ways that matter most to them. Research has shown that patients’ and physicians’ perceptions of outcomes differ, and taking into consideration patients’ views of their own health status can lead to more effective interventions.

    Why This Is Important

    Listening to patients’ perspectives should be an essential part of the health care encounter. But in many instances, the patient’s point of view—on what matters to them, their health goals, their preferred treatment options, and the impact of treatment plans—is not taken fully into account. 

    This situation is starting to change. Policymakers, payers, providers, and the public all recognize the importance of integrating the patient voice more formally into how care is delivered and how quality is measured. Significant federal investment in patient-reported outcome measures (PROMs) is likely to lead to their broader adoption over time. 

    Recent Encouraging Steps on the Continued Uptake of PROMs

    Our Work

    While there is a high level of interest in and growing work on developing tools to collect and use patient reported information, little attention has been paid to the tools’ implementation issues and to their potential value in primary care. UHF’s Quality Institute chose to advance the use of patient-reported outcomes to better engage patients and amplify their voices in the delivery of high-quality primary care in New York. 

    Supported by a $300,000 grant from The Engelberg Foundation, the PROPC-NY initiative, an 18-month learning collaborative, explored the feasibility of integrating PROMs into primary care. The project brought together three New York City organizations—the Institute for Family Health, Montefiore Health System, and Northwell Health—as well as a faculty of nationally recognized experts in patient engagement and patient reported outcomes. The PROPC-NY initiative had several goals:

    • Test the feasibility of routine collection and use of patient-reported outcomes to improve care planning and so that it aligned to patient goals, especially patients facing complex health challenges and difficult socioeconomic circumstances
    • Identify best practices related to utilizing patient-reported information—when and how to collect information from patients, how to use responses to create care plans, how to best monitor patients based on patient feedback
    • Advance knowledge of PROMs among primary care providers in New York and nationally as the field of patient-reported measurement grows and their use in value-based payment policies spreads

    The Bottom Line

    PROPC-NY participants were early adopters, willing to test the value of seeking patient-reported information despite numerous obstacles: uncertainty; the dominance of a traditional, well-established, transactional way of practicing medicine; and considerable disincentives to change. The pilot successfully highlighted benefits and challenges and provided a roadmap for continuing this work. The use of PROMs by PROPC-NY participants was largely associated with a positive experience for practice staff and their patients. 

    Summaries of the PROPC-NY Participants’ Experience


    Findings from the PROPC-NY Collaborative are available as a collection of resources and reports that include:

    • What’s the Upshot? A report that discusses the implications of the PROPC-NY findings for policy and practice (view pdf)
    • Using Patient-Reported Outcomes in Primary Care: An Implementation Guide. A practical toolkit that provides resources to primary care practice teams on how to identify and incorporate patients’ needs and goals. (view pdf)
    • A series of three field reports that describe the work of each of the PROPC-NY’s three participating organizations:
      • Bolstering Interdisciplinary Teams through the Use of Patient-Reported Outcomes: Findings from Northwell Health System (view pdf)
      • Goal Achievement as a Patient Reported Outcome Related to Social Determinants of Health: Findings from the Institute for Family Health (view pdf)
      • Stress Level as Patient-Reported Outcome in Safety-Net Primary Care Practice: Findings from Montefiore Health System (view pdf)
    Other Resources: Presentations, Webinars, and More

    PROPC-NY Learning Collaborative

    To increase patient engagement and the patient voice in health care, the Quality Institute has advanced the use of Patient-Reported Outcome Measures with a learning collaborative. Click through to see (and hear) presentations from these sessions.

    Meet the Participants