Family Caregiving: Publications

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Quality Collaborative, Spring 2017

Publication Date: 06.02.2017

“I Can Take Care of Myself!”: Patients’ Refusals of Home Health Care Services

Publication Date: 05.15.2017
Author: Carol Levine and Teresa Lee

A summary of the discussion and findings of a December 2016 roundtable, co-sponsored by UHF and the Alliance for Home Health Quality and Innovation, on refusals of home health care services.

Blueprint, Spring 2017

Publication Date: 04.24.2017

UHF’s Partnerships for Early Childhood Development initiative links primary care and social services agencies to identify and address social determinants of health that pose particular risks to children 5 and under. Also in this issue: the upending of a historic federal-state partnership on Medicaid; enlisting health care in preventing homelessness; the latest class of Clinical Quality Fellows; engaging family caregivers before patients’ hospital discharge; and much more.

Implementing New York State’s CARE Act: A Toolkit for Hospital Staff

Publication Date: 02.17.2017

This step-by-step guide to implementing provisions of the CARE Act supports hospital staff in identifying, engaging, and preparing family caregivers, to improve the transition of patients from hospital to home.

New York State’s CARE Act: A Guide for Patients and Family Caregivers

Publication Date: 02.17.2017

A Next Step in Care guide to New York’s CARE Act—containing requirements designed to better engage and prepare family caregivers prior to patients’ hospital discharge—is available in English, Spanish, Chinese, and Russian and in a full-length and abbreviated version

Building a More Effective Health Care System for Every New Yorker

Publication Date: 12.07.2016

This year’s annual report focuses on how UHF’s initiatives are addressing the challenges of a changing health care landscape and having a real impact on the quality, accessibility, affordability, and patient experience of health care.

“It All Falls on Me”

Publication Date: 09.29.2016
Author: Carol Levine and Susan C. Reinhard

A joint report from UHF and AARP Public Policy Institute looking at family caregiver perspectives on medication management, wound care, and video instruction.

Work in Progress

Publication Date: 11.03.2014

New York’s health care system is on the move, with dramatic changes being made in its basic elements. The Fund is playing an important role in that transformation, as this 2014 annual report highlights.

Family Caregivers Providing Complex Chronic Care to People with Cognitive and Behavioral Health Conditions

Publication Date: 08.19.2014
Author: Susan C. Reinhard (AARP Public Policy Institute), Carol Levine (United Hospital Fund), and Sarah Samis (United Hospital Fund)

This United Hospital Fund and AARP Public Policy Institute report provides compelling new evidence that family caregivers who provide complex chronic care to people who also have cognitive and behavioral health conditions face particularly demanding challenges.

Project RED, Tool 7

Publication Date: 06.03.2014
Author: Carol Levine, Jennifer Rutberg, Brian Jack, MD, and Ramon Cancino, MD

This Project RED tool formalizes the role family caregivers play in a successful transition from the hospital by building upon their relationship with the patient and identifying and addressing their needs for training and support.

Family Caregivers Providing Complex Chronic Care to Their Spouses

Publication Date: 04.14.2014
Author: Susan C. Reinhard (AARP Public Policy Institute), Carol Levine (United Hospital Fund), and Sarah Samis (United Hospital Fund)

A report from the Fund and the AARP Public Policy Institute examining the wide range of medical/nursing tasks spousal caregivers perform and the lack of support they have for such tasks.

Blueprint, Fall/Winter 2013

Publication Date: 12.16.2013

The fall/winter 2013 issue of Blueprint explores the Fund/GNYHA Clinical Quality Fellowship Program, an intensive training and mentoring experience that is creating a new generation of quality champions to lead patient safety and quality improvement efforts. Also featured: Jim Tallon on New York's long-term health care reform efforts; an innovative effort to treat depression within the primary care setting; the Fund's annual gala; and more news of the Fund's latest program initiatives.

Employed Family Caregivers Providing Complex Chronic Care

Publication Date: 11.20.2013
Author: Susan C. Reinhard (AARP Public Policy Institute), Carol Levine (United Hospital Fund), and Sarah Samis (United Hospital Fund)

This report shows that employed family caregivers, despite their workplace obligations, perform many of the tasks that health care professionals do—a range of medical/nursing tasks including medication management, wound care, using meters and monitors, and more.

Making Change Work

Publication Date: 10.29.2013

The 2013 annual report explores how substantive, timely Fund initiatives continue our historic role of speaking to health care’s most important challenges and opportunities—and shaping a system that truly works for all.

Family Caregivers and Health Care Professionals Working Together to Improve Care

Publication Date: 08.02.2013
Author: Carol Levine

Carol Levine delivered this presentation on July 19, 2013, for the New York State Partnership for Patients' "Patient and Family Engagement Forum."

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