Family Caregiving: Publications

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Blueprint, Spring 2010

Publication Date: 06.16.2010
The latest issue of Blueprint presents the Fund's new family caregiving quality improvement collaborative, commentary by Jim Tallon on post-reform imperatives, and a host of articles on Fund initiatives, grants, and events.

Bridging Troubled Waters

Publication Date: 01.08.2010
Author: Carol Levine, Deborah Halper, Ariella Peist, and David Gould

The January 2010 issue of Health Affairs features a United Hospital Fund staff-written article titled “Bridging Troubled Waters: Family Caregivers, Transitions, and Long-Term Care.

Blueprint Fall 2009

Publication Date: 12.07.2009
The latest issue of Blueprint presents an overview of the critical issue of expanding insurance coverage, commentary by Jim Tallon on the crisis in health care, and a host of features on Fund initiatives and events.

Vision/Accomplishment

Publication Date: 11.20.2009

The United Hospital Fund's 2009 Annual Report highlights the Fund's accomplishments over the past year and presents a vision—and imperatives—for the future of our health care system.

Blueprint Summer 2009

Publication Date: 07.29.2009
The latest issue of the Fund's newsletter spotlights the Fund's comprehensive new look at the state of New York's insurance market, a "culture-changing" program helping two hospitals encourage breastfeeding, updates on other Fund initiatives, and more.

Blueprint Spring 2009

Publication Date: 04.08.2009
A new Fund website for family caregivers, an innovative approach to high-cost patients, an invaluable consumer guide to health care coverage after job loss, and more Fund news.

Voice of the Family Caregiver

Publication Date: 12.31.2007
Author: Carol Levine
Carol Levine presented "Voice of the Family Caregiver" at the ABIM Foundation's 2007 summer forum titled "Coordination of Care: Missed Opportunity?" The text is available.

The Health Care Reform Imperative

Publication Date: 03.11.2007

The budget process forces a focus on fundamental issues, and offers a chance for decisions critical to real health care reform, says Fund President Jim Tallon, in his latest Blueprint editorial.

An Ethical Framework for New York State Policy Concerning Family Caregivers

Publication Date: 11.13.2006
Author: Carol Levine
This document--a statement of basic values, principles, and community norms that should govern policy-making and implementation--spells out the standards by which specific regulations, policies, and programs can be measured.

New York State Policy Agenda for Family Caregivers

Publication Date: 11.13.2006
Author: Carol Levine
This document calls for an assessment of caregivers' needs and available services to meet those needs, a review of key policies and practices, the establishment of a mechanism to coordinate caregiving-related activities and policy implementation, and a focus on strengthening local agencies to reach, assess, and support caregivers.

The Top Ten Things Caregivers Don't Want to Hear….

Publication Date: 10.25.2006
Author: Carol Levine
Carol Levine, Director of the Fund's Families and Health Care Project, presents a collection of the kinds of unsolicited advice, unwelcome criticism, and undeserved praise that she and other caregivers receive all too often.

Closing the Home Care Case: Clinicians' Perspectives on Family Caregiving

Publication Date: 06.15.2006
Author: Alene, Hokenstad, Andrea Y. Hart, David A. Gould, Deborah Halper, Carol Levine
Published in August 2005 in Home Health Care Management and Practice, “Closing the Home Care Case: Clinicians' Perspectives on Family Caregiving” (abstract available) reveals five inherent conflicts that affect home health care clinicians' interactions with family caregivers, as revealed in focus group discussions.

Closing the Home Care Case: Home Health Aides' Perspectives on Family Caregiving

Publication Date: 06.15.2006
Author: Alene Hokenstad, Andrea Y. Hart, David A. Gould, Deborah Halper, and Carol Levine
Published in June 2006 in Home Health Care Management and Practice, “Closing the Home Care Case: Home Health Aides' Perspectives on Family Caregiving” (abstract available) provides new insight from, and identifies two current challenges facing, home health aides, as revealed in focus group discussions.

"This Case Is Closed": Family Caregivers and the Termination of Home Health Care Services for Stroke Patients

Publication Date: 06.15.2006
Author: Carol Levine, Steven M. Albert, Alene Hokenstad, Deborah E. Halper,
Andrea Y. Hart, and David A. Gould

Published in June 2006 in The Milbank Quarterly, “‘This Case Is Closed': Family Caregivers and the Termination of Home Health Care Services for Stroke Patients” provides an overview of the prospective study. The study enrolled and periodically interviewed a sample of 99 New York City family caregivers taking care of stroke or brain injury patients following their discharge from a hospital or short-term nursing home stay.

Landmark Study Profiles Young Caregivers

Publication Date: 09.14.2005
Author: National Alliance for Caregiving / United Hospital Fund

As many as 1.4 million U.S. children provide care for an adult family member, according to a report from the United Hospital Fund and the National Alliance for Caregiving.

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