Always on Call

When Illness Turns Families into Caregivers

Author/Editor: Carol Levine, editor

This book, first published in 2000 and now substantially updated and published by Vanderbilt University Press, presents an intimate look at the world of family caregiving. The compelling narratives by caregivers capture the intensity of the caregiving experience, while chapters by noted health care professionals, many of whom speak of their own experiences, analyze the impact of caregiving, urge more professional advocacy on behalf of caregivers, and offer insightful suggestions for building partnerships for change and fostering improvement.

This book, first published in 2000 and now substantially updated, presents an intimate look at the world of family caregiving. The compelling narratives by caregivers capture the intensity of the caregiving experience, while chapters by noted health care professionals, many of whom speak of their own experiences, analyze the impact of caregiving, urge more professional advocacy on behalf of caregivers, and offer insightful suggestions for building partnerships for change and fostering improvement.

This second edition includes:

  • a new section on innovative caregiving programs
  • new chapters on the financial impact of caregiving,
  • caregiving as a workplace dilemma
  • the added burdens of end-of-life caregiving
  • clinician-family conflicts (and new approaches for resolving them)
  • new federal and state policy initiatives
  • resources for families and professionals.

Designed for family caregivers, health professionals, administrators, pastoral care providers, policymakers, patient and caregiver advocates, and human resource professionals, Always on Call is an essential book for understanding the current realities of family caregiving. Equally important, it builds a compelling case for change.

To order, visit Vanderbilt University Press.

Table of Contents:

Foreword
James R. Tallon, Jr.

1. Introduction: The Many Worlds of Family Caregivers
Carol Levine

Part I. VOICES OF FAMILY CAREGIVERS

2. First My Mother, Then My Aunt: A Caregiver's Diary of Alzheimer's Disease
Carol Ann Young

3.A Crisis of Caregiving, a Crisis of Faith
Rabbi Gerald I. Wolpe

4. Learning to Be a Caregiver, Trying to Be a Brother
Timothy J. Sweeney

5. Pushing the Boundaries in Assisted Living: Failures in Caring
Robert L. Kane and Joan C. West

6. Family Caregiving: Both Sides Now
Jane Bendetsen

7. Bringing Up Alex: A Parent Becomes an Advocate
Kathryn Cooper Corley

8. The Courage of Caring
Gladys González-Ramos

9. The Loneliness of the Long-Term Care Giver
Carol Levine

Part II. THE IMPACT OF CAREGIVING

10. From Sadness to Pride: Seven Common Emotional Experiences of Caregiving
Barry J. Jacobs

11. Caregiving and the Workplace
Gail Gibson Hunt

12. The Financial Impact of Caregiving
Donna L. Wagner

13. Social Workers, the Health Care Team, and Caregiver Advocacy
Terry Altilio and Raymond L. Rigoglioso

14. The Trouble with Families: Toward an Ethic of Accommodation
Carol Levine and Connie Zuckerman

15. 'Til Death Do Us Part: Family Caregiving at the End of Life
Connie Zuckerman

Part III. RESPONDING TO CAREGIVERS' NEEDS

16. Caregiving on the Public Policy Agenda
Lynn Friss Feinberg

17. The Visiting Doctors Program: Bringing Care Home
Shoshanna Korn-Meyer, Lili Toborg, and Jeremy Boal

18. Windows to the Heart: A Family-Centered Hospital Unit for Dementia Patients
Jeffrey N. Nichols

19. Connecting Caregivers through Technology
Andrea Y. Hart

Part IV. RESOURCES

20. On the Quest for Resources: A Guide for Caregivers and Professionals
Alexis Kuerbis

To order, visit Vanderbilt University Press.

Copyright: 2004
Published: 11.10.2004

 

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